International Myeloma Foundation
MYELOMA MINUTE | Up To The Minute News | 5.5.2022
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COVID-19 Surges and Waves: What Should Myeloma Patients Do?
With another ongoing spike in the number of coronavirus cases and hospitalizations across the U.S., IMF Chairman of the Board Brian G.M. Durie reassesses the situation in his blog to clarify what actions need to be taken and to provide proper guidance to myeloma patients anew. Dr. Durie brings to light the rise of new omicron subvariants, the possibility of a “sixth wave,” and elaborates on ways to keep safe during these new COVID-19 surges and waves. He advises myeloma patients to reach out to the IMF’s InfoLine for expert advice and support during these difficult times.
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Now Available: The Interactive Spring 2022 Edition of Myeloma Today
The digital edition of Myeloma Today is now interactive — with many helpful hyperlinks to a broad range of resources.. In the Spring 2022 edition, IMF Chairman of the Board and Chief Scientific Officer Dr. Brian G.M. Durie delves into the FDA’s approval of CARVYKTI™ CAR T-cell therapy and what this means for patients with relapsed or refractory myeloma. IMF Chief Medical Officer Dr. Joseph Mikhael focuses on bispecific antibodies as the next wave of immunotherapy options for myeloma patients. IMF Senior Director of Member Events Suzanne Battaglia discusses the four important myeloma research projects that are being funded by the 2022 Brian D. Novis Research Grants. Plus, find out why Myeloma Action Month was successful this year and more! The Spring 2022 edition of Myeloma Today is available to download for FREE.
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Now Available: NLB Publication on Selinexor Therapy for Myeloma Patients
On November 16, 2021, several members of the International Myeloma Foundation (IMF) Nurse Leadership Board (NLB) convened at a virtual round table to discuss best practices around optimizing treatment duration with selinexor therapy for patients with multiple myeloma (MM). The NLB identified resources and communication strategies to facilitate optimal management and supportive care for patients with MM on selinexor therapy in community practice. Download the full publication from the IMF website to know more.
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A Day in The Life Podcast Featuring Thomas Goode
Thomas Goode was diagnosed with myeloma in 2005, at the young age of 34. In this audio podcast, he shares an in-depth story of his diagnosis, treatments, and multiple relapses. Listen to Thomas Goode’s inspiring story of hope and resilience.
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This Week: IMF Virtual Regional Community Workshop — Mountain States
The IMF Regional Community Workshop — Mountain States will be held this Saturday, May 7 at 10:00 a.m. MT (US and Canada). IMF Senior Director of Regional Community Workshops Kelly Cox will kick off the workshop. Guest speakers include Siddhartha Ganguly, MD, FACP (Houston Methodist Hospital — Houston, TX), Rafael Fonseca, MD, FACP (Mayo Clinic — Phoenix, AZ), and IMF Nurse Leadership Board (NLB) Member Tiffany Richards, PhD, ANP-BC (MD Anderson Cancer Center — Houston, TX). The workshop will include an introduction to myeloma, upfront treatments at diagnosis, maintenance therapy, relapse information, and an update on clinical trials. IMF NLB Member Tiffany Richards will talk about managing side effects and symptoms of myeloma and its treatments. After each presentation with the experts, attendees will have ample time to ask questions.
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IMF Patient and Family Webinar: New Frontiers in Myeloma Care
The IMF Patient and Family Webinar, on Saturday, May 14 at 10 a.m. PST / 11 a.m. MST /12 p.m. CT/ 1 p.m. ET, will focus on “New Frontiers in Myeloma Care.” IMF Chairman Dr. Brian G.M. Durie will moderate presentations with the following myeloma experts: Yi Lin, MD, PhD (Mayo Clinic — Rochester, MN), IMF Nurse Leadership Board Member Ann McNeill RN, MSN, APN (John Theurer Cancer Center, Hackensack University Medical Center — Hackensack, NJ), and Nikhil Munshi, MD (Dana-Farber Cancer Institute — Boston, MA). The webinar will conclude with a summary panel discussion, a webinar survey, and closing remarks. You won’t want to miss this lively webinar. At the end of the presentations, participants will have time to ask questions.
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Shop AmazonSmile for Mother's Day and Give to the IMF!
When you shop at and designate the International Myeloma Foundation (IMF) as your preferred charity, Amazon donates 0.5% of all purchases you make to the IMF, at no added cost to you. Make this Mother’s Day special by shopping at AmazonSmile while giving to the IMF at the same time!
ask dr durie video about kidney creatinine
#ASKDRDURIE | Dr. Durie's Weekly Web Video Series
When a myeloma patient’s kidney creatinine levels increase, does this indicate a relapse?
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Online Patient Forum

Smart Patients: Join the Conversation
Clinical Trial Fact Sheets

CANOVA Trial (Accruing)

Phase II Relapsed or Refractory Venetoclax Trial (Accruing)

Phase I/II Trial Using a Venetoclax Combination With or Without Bortezomib (Accruing)

IKEMA Trial (Fully Accrued)

IMROZ Trial (Fully Accrued)

BOSTON Trial (Fully Accrued)
Upcoming Events

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RIMMSG Comedy Fundraiser

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14th Annual Czerkies Memorial Golf Outing

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Webinar Replays
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Regional Community Workshop — West South Central

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Regional Community Workshop — Tri-State

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Are Side Effects Impacting Your Quality of Life?

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