International Myeloma Foundation
MYELOMA MINUTE | Up To The Minute News | 5.12.2022
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IMF Names Fatima Scipione as SVP of Strategic Alliances and External Affairs
The International Myeloma Foundation (IMF) announced today that Fatima Scipione, former Head of Global Oncology Patient Advocacy and Engagement at Takeda Oncology, has been named as the IMF’s new Senior Vice President of Strategic Alliances and External Affairs. IMF President & CEO Yelak Biru is truly elated to have Fatima on board: "I am thrilled to have Fatima join our team as the Senior Vice President of Strategic Alliances and External Affairs. Fatima is one of the most caring, patient-centered, compassionate leaders I have ever encountered in my myeloma and business journeys. Fatima's decades of myeloma-focused, cross-vertical, and global collaboration experience as well as her commitment to excellence will be key accelerators in accomplishing the IMF’s mission which focuses on research, education, support, and advocacy.” To know more about Fatima, read the IMF’s press release.
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Now Available: Guía para el paciente de nuevo diagnóstico — Edición de 2022
One of the most daunting aspects of being diagnosed with myeloma is learning about an unfamiliar disease that is quite complicated. The IMF’s Spanish-language Guía para el paciente de nuevo diagnóstico - Edición de 2022 (Patient Handbook for the Newly Diagnosed - 2022 edition English version also available here) provides an overview of myeloma, with a focus on getting the correct diagnosis, the tests you really need, when to begin treatment, which issues to consider when selecting your treatment regimen, and supportive care measures to alleviate the physical and emotional impact of myeloma. If you or anyone you know might benefit from this publication, get a FREE copy in printed form here or as a downloadable PDF.
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Cancer Drug Parity Act Update: Patients Must Have Access to Oral Cancer Therapies
In the 2022 Spring Edition of Myeloma Today, IMF Senior Director of Public Policy & Advocacy Robin Levy gives an update on the Cancer Drug Parity Act. “The IMF-led Coalition to Improve Access to Cancer Care (CIACC) has accomplished record progress with its work to advance oral parity legislation. The Cancer Drug Parity Act was brought up as a solution for patients during the COVID-19 pandemic, which helped make legislators aware of this issue.” She further reports that “the bill received traction in COVID-19 legislative discussions, but ultimately, was not included in relief packages. Despite this, we were pleased with the increased support. At the end of the last Congress, the bill ended up with 170 House co-sponsors and 19 Senate co-sponsors.” To learn more, visit the IMF website or read the full publication of the 2022 Spring Edition of Myeloma Today.
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This Week: IMF Patient and Family Webinar: New Frontiers in Myeloma Care
This Saturday, May 14 at 10 a.m. PST / 11 a.m. MST /12 p.m. CT/ 1 p.m. ET, the IMF Patient and Family Webinar will focus on “New Frontiers in Myeloma Care.” IMF Chairman Dr. Brian G.M. Durie will moderate presentations with the following myeloma experts: Yi Lin, MD, PhD (Mayo Clinic — Rochester, MN), IMF Nurse Leadership Board Member Ann McNeill RN, MSN, APN (John Theurer Cancer Center, Hackensack University Medical Center — Hackensack, NJ), and Nikhil Munshi, MD (Dana-Farber Cancer Institute — Boston, MA). The webinar will conclude with a summary panel discussion, a webinar survey, and closing remarks. You won’t want to miss this lively webinar. At the end of the presentations, participants will have time to ask questions.
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IMF Virtual Regional Community Workshop — Midwest on May 21
The IMF Regional Community Workshop Midwest will be held on Saturday, May 21 at 8:00 a.m. PT/ 9:00 a.m. MDT/ 10:00 a.m. CT/ 11:00 a.m. ET. IMF Senior Director of Regional Community Workshops Kelly Cox will kick off the workshop. Guest speakers include Morie Gertz, MD (Mayo Clinic—Rochester, MN), Al-Ola Abdallah, MD (University of Kansas Medical Center—Kansas City, KS), and IMF Nurse Leadership Board (NLB) Member Teresa Miceli, RN, BSN, OCN (Mayo Clinic—Rochester, MN). The workshop will include an introduction to myeloma, upfront treatments at diagnosis, maintenance therapy, relapse information, and an update on clinical trials. IMF NLB Member Teresa Miceli will talk about managing side effects and symptoms of myeloma and its treatments. After each presentation with the experts, attendees will have ample time to ask questions.
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Experience a Grand Tour of Scotland with this Whisky Tasting Fundraiser!
Enjoy a "Grand Tour of Scotland" Single Malt Whisky tasting tour with whisky ambassador and enthusiast Gary McAdam. He will take you on a guided flavor tour through the whisky regions of his homeland, Scotland. From single malts, tasting mats, and an online presentation, Gary will bring everything! All we need are eager enthusiasts to enjoy the experience (tastings are currently restricted to the local southern California area only). Show your appreciation of this whisky tasting tour by donating to the IMF website. Donations will benefit the International Myeloma Foundation in honor of Gary’s wife, Frederique McAdam.
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Online Patient Forum

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Clinical Trial Fact Sheets

CANOVA Trial (Accruing)

Phase II Relapsed or Refractory Venetoclax Trial (Accruing)

Phase I/II Trial Using a Venetoclax Combination With or Without Bortezomib (Accruing)

IKEMA Trial (Fully Accrued)

IMROZ Trial (Fully Accrued)

BOSTON Trial (Fully Accrued)
Upcoming Events

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RIMMSG Comedy Fundraiser

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14th Annual Czerkies Memorial Golf Outing

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Laughs 4 Life Returns
Webinar Replays
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Regional Community Workshop — Mountain States

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Regional Community Workshop — West South Central

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Regional Community Workshop — Tri-State

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We Thank Our Sponsors:

Bristol Myers Squibb, GSK, Janssen Oncology, and Karyopharm Therapeutics
We also thank individuals like you for your continued support!
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