International Myeloma Foundation
Advocacy Update | October 2020
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money with pills on top
Copay Accumulator Program Awareness
Many myeloma patients receive help from manufacturer assistance programs to help them afford their medications, but this could be in jeopardy for some people. We wanted to make myeloma patients and advocates aware of accumulator adjustment programs, a disturbing trend in insurance benefit design that could soon be impacting patient access more widely.

Copay accumulator programs prohibit manufacturer assistance for these medications to count towards a patient's deductible or out-of-pocket maximum. The issue could be an increasingly important one to address because The Department of Health and Human Services' (HHS) 2021 Notice of Benefit and Payment Parameter (NBPP) rule includes language that would allow copay accumulator programs to be implemented by insurers.

While we do have an action alert available to send asking legislators to help support this delay this, we hope you will reach out to us and share you story if you have been impacted. Click here to contact your legislators and email us at if you think you have been impacted.
open enrollment on notebook
Medicare Open Enrollment Begins
Medicare open enrollment began on October 15, 2020 and ends on December 7, 2020. As a Member of the MapRx Coalition, IMF’s Advocacy Team helped in the production of a yearly guide to open enrollment. MapRx focuses on bringing together advocacy groups who wish to improve access and affordability within the Medicare Part D program. We hope you will find this document helpful which can be viewed here.

If you have specific questions or are seeking guidance about which plan may be best for you, we suggest reaching out to your state’s State Health Insurance Assistance Program (SHIP). To view state specific information please visit here.
future 40 award for danielle doheny
IMF’s Danielle Doheny Honored with Future 40 Award
IMF’s Danielle Doheny has been recognized as one of Maverick PAC’s Future 40 honorees. Maverick PAC is the premier national network for conservative young business professionals. Previous honorees have included Members of Congress, tech innovators, professional athletes, community leaders, entrepreneurs and more

We know she is driven by her passion to help her father and all myeloma patients. IMF is proud of Danielle’s accomplishment as a member of our bipartisan government relations and advocacy team.

Want to get involved?

Interested in learning more or taking actions about our federal and/or state priorities? Email the IMF Advocacy Team,, to find out ways you can help and make your voice heard. Find us on the Twitter and Facebook! We will be sharing the latest news on legislation and policies we are tracking. And follow @Chemoparity for updates on our fight to get oral parity passed at the state and federal levels.
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