International Myeloma Foundation
Advocacy Update | April 2021
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Drug Pricing Proposals Introduced
This month, Members of the House of Representatives released different proposals aimed at addressing the high cost of prescription drugs. Democrats reintroduced their proposal, H.R. 3, the Elijah E. Cummings Lower Drug Costs Now Act and Republicans introduced H.R. 19, The Lower Costs, More Cures Act. Both bills take different approaches aimed at reducing what patients pay for their drugs.

View more about the House Democrats’ proposal here and the House Republicans’ proposal here. The International Myeloma Foundation will be monitoring these efforts and will work to ensure we convey the myeloma patient perspective to legislators as these discussions occur.
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CAP Letter
On April 26, 2021, The International Myeloma Foundation joined a large group of advocates in sending a letter to Congressional leaders asking for support and funding for Consumer Assistance Programs.

Consumer Assistance Programs, also knowns as CAPs are designed to help patients navigate their health insurance coverage. Specifically, “CAPs assist consumers in appealing, resolving, and tracking insurance disputes including surprise medical bills and claims denials. In addition, they also help patients and consumers understand and navigate narrow networks, identify sources of charity care, and resolve issues related to advance premium tax credits.”

To view the letter, click here.
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Bipartisan Duo Support Blood Search Research Continuity
On April 28, 2021, Rep. Doris Matsui (D-CA) and Rep. Bilirakis (R-FL) sent a letter to leaders of the House Appropriations Committee requesting continuity in blood cancer research.

Blood cancers have been a prioritized topic area in the Department of Defense’s Congressionally Directed Medical Research Program (CDMRP) for several years now, however, each year Congress must reexamine these topic areas and without Congressional support blood cancers could drop off of this list. The International Myeloma Foundation joins with other blood cancer advocacy groups to petition Congress and ensure this research continues.

We are thankful to both Rep. Matsui and Rep. Bilirakis for prioritizing this issue and making this important request. We appreciate their efforts to ensure Congressional leaders know how important this research is to the blood cancer community. View their letter here.
 

Want to get involved?

Interested in learning more or taking actions about our federal and/or state priorities? Email the IMF Advocacy Team, advocacy@myeloma.org, to find out ways you can help and make your voice heard. Find us on the Twitter and Facebook! We will be sharing the latest news on legislation and policies we are tracking. And follow @Chemoparity for updates on our fight to get oral parity passed at the state and federal levels.
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