International Myeloma Foundation
Advocacy Update | June 2021
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CURES 2.0 Discussion Draft Released
On June 22nd Reps. Diana DeGette (D-CO) and Frank Upton (R-MI) released a draft legislative package known as Cures 2.0, a follow-up to the 21st Century Cures legislation that was passed in 2017 and championed by the pair.

Rep. DeGette stated “While the 21st Century Cures Act sought to improve how new drugs and treatments are researched and developed in the U.S., Cures 2.0 seeks to improve how those new treatments and therapies are delivered to patients.”

The draft prioritizes many items IMF also views as important issue areas such as: diversity in clinical trials; improving training and resources for caregivers; and, patient engagement in healthcare decision making. We look forward to working with other stakeholders to ensure cancer patients concerns are understood during this process.

To view more about the legislation, click here.
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Myeloma ACTION Team-Call for Action
Do you have interest in advocating for myeloma patients? We have an amazing opportunity that will allow motivated volunteers to get more involved in IMF’s advocacy program. The Myeloma ACTION Team is in the process of relaunching with a renewed focus on engaging patients in the legislative process.

The Myeloma ACTION Team, also known as Advocates Committed To Inspiring Others Nationwide, was formed in 2013 to unite our top advocates and build a community that fosters education, action and empowerment.  The team works together to strengthen support for legislation, build strong grassroots networks in every state, and raise awareness of issues impacting myeloma patients.

This opportunity is open to both patients and their loved ones. If you have an interest in participating, please email advocacy@myeloma.org with the subject line “Action Team” for more information.
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Supreme Court Ruling on the Affordable Care Act
The Affordable Care Act has withstood its latest Supreme Court challenge with SCOTUS releasing a 7-2 opinion on June 17th stating that the plaintiffs bringing the case challenging the landmark health care law did not have standing to sue.

This means that prohibitions against discrimination of people with pre-existing conditions, like cancer, by health insurers will stay in place, along with a myriad of other provisions like Medicaid expansion and the health care exchanges.
 

Want to get involved?

Interested in learning more or taking actions about our federal and/or state priorities? Email the IMF Advocacy Team, advocacy@myeloma.org, to find out ways you can help and make your voice heard. Find us on the Twitter and Facebook! We will be sharing the latest news on legislation and policies we are tracking. And follow @Chemoparity for updates on our fight to get oral parity passed at the state and federal levels.
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