International Myeloma Foundation
MYELOMA MINUTE | Up To The Minute News | 9.2.2021
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Gene modulation
CRISPR Gene Editing Can Destroy COVID-19, Says New Study
The groundbreaking gene editing technology known as CRISPR could pave the way to the elimination of COVID-19 virus production in the future, says IMF Chairman Dr. Brian G.M. Durie. And is a new “variant of concern” on the horizon?
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Save the Date: #KNOWMYELOMA Variety Show on Twitch.TV on September 30
The #KNOWMYELOMA Variety Show will stream on Twitch.tv on Thursday, September 30, 2021 at 6 p.m. PT / 9 p.m. ET.  It features performers who have been touched in one way or another by myeloma, including internationally touring comedian Forrest Shaw, “Ologies” podcast host Alie Ward, Dance Theatre of Harlem ballerina Daphne Lee, LA-based writer and Mom Jen Curran, IMF Chief Medical Officer Dr. Joseph Mikhael, and more!

The show closes out September’s Blood Cancer Awareness Month (BCAM). Throughout this month, the IMF asks one simple question: “Do You Know Myeloma?” and invites the public to explore the campaign at the link below.
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Listen to This “A Day in the Life” Podcast with Patient 007 Jim Bond
In this episode of “A Day in the Life,” twenty-nine-year myeloma survivor Jim Bond, who many lovingly call ‘the real James Bond,’ shares his story. And like the fictional spy who has faced many trials in his life and come out alive and on the other side, Jim Bond continues to survive and thrive. Diagnosed with multiple myeloma in 1992, Jim is a retired CPA, a husband to his loving wife Kathleen for more than 50 years, a father of two sons, and a grandparent.
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Learn More About This Actively Accruing Venetoclax Clinical Trial
The CANOVA study is a randomized, phase III, multi-center study using ventetoclax in subjects with relapsed or refractory multiple myeloma who have received at least two prior lines of therapy, including lenalidomide and a proteasome inhibitor. Venetoclax is part of a class of medications called B-cell lymphoma-2 (BCL-2) inhibitors that work by blocking the action of BCL-2 (a protein in the body that regulates cell death). This study will evaluate the safety and effectiveness of venetoclax plus dexamethasone compared with pomalidomide plus dexamethasone in approximately 122 patients in each study group.
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Watch Now to Learn How to Manage Your Myeloma and Prevent COVID-19
In this webinar, myeloma experts answer questions including: When to receive a COVID-19 booster shot? What are the first steps for newly diagnosed myeloma patients? How to manage side effects? What are the newest immune therapies, and what treatments should relapsed patients undergo?

IMF Chairman Dr. Brian G.M. Durie moderates presentations with myeloma experts Rafat Abonour, MD (Indiana University School of Medicine — Indianapolis); Noopur Raje, MD (Massachusetts General Hospital — Boston); and Kevin Brigle PhD, ANP (Virginia Commonwealth University, Massey Cancer Center — Richmond, VA). If you missed the live webinar, you can watch the replay now.
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Watch Now to Learn How to Get Financial Help for Myeloma Patients and Caregivers
In this video, a financial navigator, oncology social worker, and myeloma nurse tackle the tough finance-related questions myeloma patients encounter including: What should cancer patients do when they can no longer work? How to apply for federal disability benefits? What patient financial support options exist? How to discuss high copays with your healthcare team?

The speakers include IMF Nurse Leadership Board member Beth Faiman PhD, MSN, APRN-BC, AOCN®, FAAN; Oncology Social Worker Rebecca Zeiter, MSSA, LSW; and Financial Navigator Shontia Gamble, LSW. All the speakers are practicing in their fields at the Cleveland Clinic Taussig Cancer Institute.

If you missed the live webinar, you can watch the replay now.
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Register Now for the Ninth Annual Miracles for Myeloma 5K Virtual Run/Walk
The Ninth Annual Miracles for Myeloma Virtual 5K Run/Walk will take place on Saturday, September 18, 2021. To participate, run, walk, or a use a treadmill to complete a 5K (3.1 miles) any time in the month of September. Record your best time and submit it before September 18. You can run as an individual or start a virtual team. Learn all the details at the link below!
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Calling All Researchers: Submit Your Grant Applications
The Brian D. Novis Research Grants honor IMF founder Brian Novis, who succumbed to multiple myeloma in July of 1992. The grants are awarded to researchers working in the field of multiple myeloma and related disorders, including smoldering multiple myeloma (SMM), monoclonal gammopathy of undetermined significance (MGUS), and immunoglobulin-derived amyloidosis. The 2022 grants will support senior research projects with $80,000 each and junior research projects with $50,000 each. The deadline to submit the applications is October 1, 2021. 
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#ASKDRDURIE | Dr. Durie's Weekly Web Video Series
This Week’s Question:

Should myeloma patients undergo an autologous stem cell transplant during the Delta variant surge? 
Watch Now
 
Clinical Trial Fact Sheets

Smart Patients: Join the Conversation

CANOVA Trial (Accruing)

NCT02899052 Trial (Accruing)

NCT03314181 Trial (Accruing)

IKEMA Trial (Fully Accrued)

IMROZ Trial (Fully Accrued)

BOSTON Trial (Fully Accrued)
Upcoming Events & Replays
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Hatfield Hike 2021

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The Best of ASCO / EHA Webinar

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M-Power Charlotte Community Workshop

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We Thank Our Sponsors:

Amgen, Bristol Myers Squibb, Karyopharm Therapeutics, Oncopeptides Inc.,
Sanofi-Genzyme, and Takeda Oncology
We also thank individuals like you for your continued support!
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